Category: Parenting

  • All Lives Matter – Karen Gaffney

    Earlier this year a friend told me she cried when she found out that Yirmiyahu had Down syndrome.  I asked her why?  After all, I didn’t cry.  “Because it was so hard.”

    That’s what I would have thought before I learned about Trisomy 21, too, but it’s not the reality.  That’s a perspective based on very limited information that isn’t globally applicable.  No, I don’t have the amazingly sunny personality that enables me to see bad things as good things – I’m a very realistic person.  Reality is what a friend of mine with a daughter with T21 told me several years before Yirmiyahu was born: “Down syndrome is just not that big a deal.”

    I know it’s hard to believe.   Yes, people with Trisomy 21 do have challenges but they also are capable of far more than what is generally assumed to be true.  Learning this as a mother of a very new infant with T21 gave me an entirely different perspective and vision.

    Below is a talk by T21 advocate Karen Gaffney.  Karen herself has T21.  Hearing Karen speak is such an encouragement to me and in the TED talk below I think you’ll also appreciate what she has to say.

    Avivah

  • A radical parenting concept – stop trying to control your kids!

    Today I had several conversations about the long term dangers of using control as an educational/motivational method – one with a young adult in the midst of experiencing this, one with the parent of high school aged daughters, and one with the mother of a nineteen year old who is choosing a different life path than his parents.

    Control is when someone tries to impose his will upon someone else to get a desired outcome.  It’s very commonly used and sadly, is too commonly taught to parents.

    Trying to control your child is an approach to human interactions that makes behavior more important than relationship and works against a child’s best interests in a number of ways.  It undermines the development of intrinsic motivation by suppressing a sense of competence and autonomy.

    In simple words, you take away a person’s desire to act in the way you want without you being on top of them.  When you try to control someone, they react by either resentfully submitting to your will or with visible defiance.

    controlling parent

    I’m going to be speaking in various locations in the coming weeks and while the specifics of each talk will vary somewhat, the common thread underlying each presentation will be the discussion of the most important factors in raising/educating a child.  (**I have an opening to speak in Tzfat on July 27 or 28 – if this is something you would like to help set up, please be in touch with me!**)

    Too often, parents and teachers want to know how to get a child to behave, but they don’t realize that they need to approach a child in a way that support his long term growth. This is unfamiliar to many of us and we resort to what we already know, using techniques that seem to give us fast and good results.  But short cuts in parenting almost always backfire and create long term detours.

    The most effective thing a parent can do is take time to learn how to support a child, how to connect with him and how to appropriately create healthy boundaries.  It’s not easy but it’s worth the time spent learning and applying a new paradigm to get real results that will last a lifetime.

    Avivah

  • Guess who’s turning three?!

    Guess who’s turning three?

    Close your eyes and guess!

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    Can it be?

    "Yes, its ME!"
    “Yes, it’s ME!!

    There are a lot of words the doctors used when they told us about Yirmiyahu’s Trisomy 21 diagnosis.

    Most of them were sad.  And depressing.  And limiting.

    There wasn’t one word that intimated to how our lives would be enriched.  Not one hint that he would be smart, capable and personable.

    There was just one thing I remember them saying that was accurate:  “How your child develops depends very much on how much you invest in him.”

    Do you know what it means to invest in your child?

    Love him as every other child.

    Yirmi falling asleep on ds16
    Yirmi falling asleep on ds16

    Include him as every other child.

    Yirmi with ds6, ds7 and ds9
    Yirmi with ds6, ds7 and ds9

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    Believe in him as  any other child.

    Yirmi learning on the computer
    Yirmi learning on the computer

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    Did we ever guess what joy was going to become a daily part of our life when this little boy was born?

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    Even if they had told us we wouldn’t have believed them.

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    Sometimes words are just inadequate.

    Avivah

  • How we celebrated our most recent bar mitzva

    SAMSUNG CAMERA PICTURESWe’ve just celebrated our third son becoming bar mitzva. Each of the three bar mitzvas have been very different and I’ll share with you what we did this time and why we did it this way!

    Several months ago we talked to our then twelve year old son about beginning bar mitzva lessons so he would be able to read the Torah portion in synagogue the week of his bar mitzva.  He told us then he didn’t want to do it.  I told him everyone is nervous in the beginning and that’s okay; he would learn what he needed to learn, practice and it would be fine.

    He went to lessons.  He occasionally would say he didn’t want to read the Torah portion in synagogue.  I told him I understood he was nervous but encouraged him that he would do fine.  After all, dh, ds21 and ds16 have often served as the baal koreh (Torah reader) in addition to leading the davening (prayer services).  It’s something the males in our family are comfortable with and enjoy doing.

    When we moved dh took ds to a local bar mitzva teacher to continue his lessons.  The teacher asked him what he wanted to do, and ds emphatically said he didn’t want to read the portion in public.  At that point, it was clear to us that he wasn’t saying this because he was unprepared, and dh and I reevaluated.  We spoke to a rav who agreed there is no reason he needs to lein his bar mitzva parsha.  If and when he wants to read the Torah portion at a later time in life, the opportunity will wait for him.

    As parents it can be a challenge to recognize when your child needs an encouraging push and when that push is too far beyond his comfort zone.   Sometimes your ego can get in the way and blur the lines.  In this case we recognized the line and discussed with ds what would make his bar mitzva special and meaningful for him.  He chose to do extra learning of mishnayos and learned the laws of tefillin in depth in addition to what he was already doing.

    How do you celebrate when a bar mitzva boy doesn’t take an active role in the prayer service?

    On the day of his actual birthday, dh went with all of our boys and visiting male friends and family members to the Kotel (Western Wall) for the morning prayer service.

    Ds13 on day of bar mitzva at Kotel
    Ds13 putting on tefillin at Kotel

    This was followed by a dairy brunch in our home.  We initially planned to have this at a restaurant but ds said he preferred it at our home.  It was a great choice on his part since it ended up being more personal, abundant and enjoyable for everyone of every age.

    After everyone ate, we went around the room and each person shared something they appreciated about ds13.  This is something we do on every birthday but for the bar mitzva it was more extensive and the older kids each spoke a few minutes about their younger brother.  Almost everyone shared about his good heart, his humility, and his comfort with who he is without a need to impress others.

    I spoke last and talked about some of his special qualities that hadn’t yet been touched on – qualities like thinking and feeling deeply, persistence and courage in sticking through difficult situations.  I got teary eyed talking about this and afterwards the kids told me that most of the people in the room were as well.  (Even an 11 year old guest later said he went out to the porch at this point so he wouldn’t cry.)

    Later that day he went to shul where the rabbi and some other men and family members danced with him.

    The following morning he was called up to make a blessing on the Torah in shul.

    We opted to skip a kiddush on Shabbos since it would highlight what he didn’t do rather than what he did do.  Since we’re new here and don’t yet know many people, having a large meal for local friends wasn’t necessary.  Instead, we had a special Shabbos spent with extended family members joining us for the entire weekend in honor of ds.

    I wasn’t going to share the picture we took right before Shabbos since the camera was held at an angle and it caused a misrepresentation of our heights.  But then I thought you might  appreciate seeing it anyway.

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    It has been such a deeply meaningful experience for me as a parent to watch ds13 emerge into the wonderful young man he is.  The maturation process is amazing to watch; when given time, acceptance and support – and our belief in them – our children will amaze us with the people they become.

    Avivah

  • The busy summer season is in full swing at our house!

    It’s a busy season of life now and I haven’t done a personal update for a while so here goes!

    Dd20 moved back home several weeks after we moved to RBS while she continues to work in Jerusalem.  Dd18 graduated seminary last week (I’m not supposed to embarrass her and say how she was honored so I won’t) and moved back home this week.  She’s finishing her second year of industrial design and has one year remaining of her college studies.  We now have three girls in the girls’ room and had to add closet space and additional shelving to accommodate the increase in storage needs.  🙂  It is SO nice to have the older girls at home again, even though they’re so busy with work and school that we don’t see much of them.

    Tonight we hosted a bridal shower for a friend of dd20 and dd18; I simultaneously attended a high school graduation.  Tomorrow afternoon is a petter chamor ceremony locally that I’d like to take the kids to; I’ve only been to one before this and most people have never been to one at all.  Tomorrow morning this is what we’ll be learning about before we go!

    Tomorrow night there will be a presentation I’m planning to attend in RBS called “Seeing the Beauty in Those Who Are Different”.  This will be “a one-of-a-kind, fascinating event on how we can all understand better the mindset, capabilities and drives of those with Down Syndrome. But really, the event is about seeing the beauty in those who are different from ourselves.”  I hope that this will be an empowering evening that will open peoples’ minds to the potential and abilities of people with T21.

    Family members from the US arrived a couple of days ago to share in the celebration of our upcoming bar mitzva!  Ds12 put on tefillin for the first time on erev Shabbos/Shavuos.  This Shabbos we’ll be having family members with us for all the meals for a total of about 20.  We’re keeping our plans on a smaller scale than our last bar mitzva, to honor the personality and preferences of the son we’re celebrating with.

    This coming week dh and I will be celebrating our 23rd wedding anniversary.

    We have Yirmiyahu’s third birthday coming up a week after the bar mitzva which means we’ll be having his upsherin (haircut for a boy when he turns three).  I can’t believe how big he is already!  The time really has flown by.

    Even without all of these milestone events, I’ve been busier than ever since moving!  There are a lot of choices for how to spend my time and now more than ever I need to plan carefully to make room for what’s important so it doesn’t get crowded out.

    Avivah

  • Fun and Easy Granola – recipe

    SAMSUNG CAMERA PICTURESToday my home is filled with the delicious smells of homemade granola!

    Granola makes a yummy and quick breakfast or snack, and is a fun and gratifying activity to do with kids with just a bit of oversight from you!

    And if you’ve ever seen the price for ready made granola in the store, after making this you’ll wonder why anyone would pay so much. 🙂

    Fun and Easy Granola

    • 3 c. rolled oats
      • 1/2 c. oil
      • 1/4 – 1/2 c. sweetener (honey, date syrup, sugar)
      • 1 t. vanilla
    • 1 c. coarsely chopped nuts (almonds, walnuts, peanuts)
    • 1 c. shredded or flaked coconut
    • 1/2 c. sesame seeds
    • 1 c. sunflower seeds (or sliced almonds, chopped walnuts)
    • optional – dried fruit (eg raisins, banana chips, papaya, mango, apple – anything!) chocolate chips –

    Mix the oil, sweetener and vanilla together and heat over a low flame for 5 minutes.  Pour the hot mixture over the oats and mix thoroughly.  Spread in a thin layer on a baking pan, then bake at 300 degrees for about 45, stirring periodically.  Mix the remaining dry ingredients and add them to the cooled oats.  If you want to add dried fruit or chocoiate chips, you can also add that now.

    That’s it!

    Not so photogenic but very delicious!
    Doesn’t look like much but it tastes sooo good!

    – I made three times this recipe, using 1 kg of oats as a base.  I used coconut oil but you can use any oil.

    – If you’re using sugar for your sweetener then stay to the lower side of the recommended amount.

    – Granola is incredibly flexible and you can add in all kinds of nuts and dried fruit to keep it different and fun every time.

    Avivah

     

  • The countertops arrived and my new kitchen is ruined – expectations, disappointment and acceptance

    I haven’t written about my kitchen renovation progress even though the counters were installed a week ago.

    The counter is beautiful.  And the cabinets are beautiful.

    But the shade of the countertops isn’t a perfect match for the cabinets.  The cabinets are a pinkish beige and the countertop is a yellowish beige and while that doesn’t sound like a big deal, it’s off.  It’s not what I was envisioning.

    The loss of a dream can be a very painful thing.

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    When Yirmiyahu was born and I found out he had Trisomy 21, I accepted it very quickly – in less than a minute.  No regrets, no what if, no wishing it would be different.

    But most parents go through a mourning period after learning of the diagnosis, because it’s hard to let go of your dream of who your child will be.

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    Why was it so easy for me to accept my newborn son had Down syndrome and after a week I’m still struggling to accept my countertops being a different shade than I anticipated?

    When I got the news about the T21, it was clear that was the reality and there was nothing that was going to change that.  The only option was to look forward and do the best I could to nurture the child I had.

    I also  have a very strong belief that everything in this world happens as it’s meant to happen, when it’s meant to happen, to whom it’s meant to happen.  G-d doesn’t make mistakes and nothing about Yirmiyahu or him being part of our family was a mistake.

    But this countertop…it felt like a mistake.  My mistake.  I have a good sense of what looks right together.  This isn’t the kind of mistake that I should have made.  Except that I did and how it happened doesn’t really matter.

    And  –  I don’t want to call it grieving because that should be saved for really serious situations – I’m feeling a sense of loss and sadness.  I invested a lot into this project because the final vision of what it would look like motivated me.   After the countertops arrived, I lost all interest in finishing the kitchen.  I wished I hadn’t started it.  Better to have kept the old tiny yucky kitchen than to invest myself in a project that didn’t turn out the way I wanted, my mind said.

    While I can accept what G-d sends, it’s harder for me to accept a mistake that I made and realize, this is also the way that G-d wanted it.

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    As long as I’m wishing I could change the countertops, tell myself that I can’t bear looking at it every day, think how it’s a reminder of my failure – I’m not going to find acceptance.  And without acceptance there’s no emotional peace and definitely no happiness.

    Acceptance truly is the answer.   Acceptance will only come when I can internalize that this is how it is, this is how it’s meant to be and this is G-d’s will just as much as something that doesn’t have any element of human involvement attached to it.  It means focusing on what I have, not on what doesn’t fit my image of how it should be.

    When I begin to let go of my insistence that something is wrong and realign my vision with the reality that’s now in front of me, it’s freeing.  I can focus on what’s right.  I have a well-designed kitchen that uses the space well, that’s easy to organize.  I have all the features in my kitchen that I wanted.  All while staying within my budget.

    Since what I want is emotional health, serenity and peace, this is what I’m choosing.  To accept that I don’t always get what I want, to enjoy what I have, and to notice what a beautiful countertop I have – even if it’s not the right shade.

    Avivah

  • My kids didn’t do anything special for me on Mother’s Day

    mothers dayYesterday was Mother’s Day and if I hadn’t popped onto Facebook, I would have been oblivious to the date.  I mentioned it to my husband, and my younger boys heard me and asked what that meant.

    I told them it’s a day that people try to be nicer to their mother than usual.

    How did our family celebrate?

    We didn’t.

    None of my children made me cards or special meals, bought me flowers, took me out or shared any special wishes for the day.  No one posted pictures on social media with comments to the world at large about how they have the best mother in the world.

    I guess I could feel like I was missing out.  That my children don’t really value my efforts.  That they don’t care about me.

    But I didn’t feel that way.

    What I value more than once a year celebrations or declarations of love are the ongoing interactions I have with my children.  Sometimes I get the bonus of mature children sharing their appreciation for how they were raised.

    Ds21 recently told me that because I always believed in him growing up, it helped him to believe in himself.  Do you know how I agonized over this child?  As my oldest and first to be homeschooled, I used to lay awake at nights wondering if I was harming him irreparably by choosing an non-mainstream educational option.  I didn’t harm him – far from it.  He’s a thoughtful, intelligent, caring young man who I feel proud and grateful to have as my son.  But he didn’t call me for Mother’s Day.

    My younger kids make me pictures and create things for me on a regular basis.  They make me smile and laugh, they ask me to play with them, they hold my hand when we take walks, and they thank me for little things – like letting them play an educational computer game, making them a meal they like or taking them on an outing.

    My older kids end every phone conversation by telling me they love me.

    They all do things just because they want to make me happy, even when it means more work and less fun for them.  They’ve cleaned, painted, renovated, babysat, cooked – without asking for payment or allowances.  They voluntarily bring food and drinks to me in my room when I’m tired or sick.  Daily they do tasks they don’t want to do because I ask them to do it.

    Every day.

    Not one of them mentioned Mother’s Day.

    And I didn’t miss it a bit.

    Avivah

  • The absurdity of the high functioning label

    Recently a guest, after observing Yirmiyahu (2 3/4 yr) for a while, asked, “So, is he high functioning?”

    Should I proudly say, ‘yes’, as if he’s better than someone who doesn’t get this lucky label?

    People are not machines or vegetables that are sorted according to quality and priced accordingly.  Inanimate objects can be rated with cold, measurable terms like ‘high functioning’ for the retail market but this is totally inappropriate for human beings.

    I understand why people ask and it’s intended as a compliment.  They see Yirmiyahu doing well and use this term as confirmation of his abilities.  But Yirmiyahu is not high functioning.  He is not low functioning.

    He’s a living, breathing person with his own unique strengths and abilities, as well as his own challenges.  Like every one of us.

    Did you ever stop to think what in the world does it mean to be ‘high functioning’?  Who gets to determine what the standards are, to check off the abilities of a fellow human being on a paper grid?

    Is childhood a competition between the haves and have-nots, between those who can and those who can’t?  Are we so arrogant as to think that because we or our children are blessed with certain abilities that it makes us better than those who have different abilities?

    Defining success in life is individual.  Different people want different things and will need different strengths in order to have lives that are meaningful to them.  We have each been created with the abilities we need to fulfill our unique purpose in life.  We aren’t meant to be the same and we shouldn’t be rated as if we are.

    The reality is that people with disabilities are being rated from the time they’re born.  They’re constantly being graded on a scale of performance that may or (more likely) may not be relevant to their individual lives.  That same scale will ignore any strengths that haven’t been determined by some official somewhere who doesn’t know the child or his life, and the child is then rated according to his functioning.

    Fair?  No.  Accurate?  No.  Is someone better than someone else with a similar condition because he’s been labeled ‘high functioning’?  No.

    So why do we use these ridiculous terms?

    Are you wondering about how Yirmiyahu is doing?  He’s awesome.  He’s smart and communicative and he’s living life on his own timeline.  Sometimes that looks impressive and sometimes it looks like there’s a delay, but none of it means that he’s ‘functioning’ better or worse.

    If you never thought about these terms until now, join the crowd!  I’ve thought a lot over the years about the importance of giving a child space to develop at his own pace and this has informed my approach to homeschooling and parenting.  But I didn’t question the usage of terms like ‘low functioning’ or ‘high functioning’ until I had a child with a different developmental curve; it was then that it became alarmingly clear to me that we limit and damage our children when we label them in this way.

    Avivah

  • How to protect our children from sexual abuse

    Last night I attended a deeply powerful evening of talks to raise awareness about the dangers of sexual abuse.  The talks were given by a psychologist, a Beit Shemesh police officer in charge of sexual abuse investigations, and three survivors of abuse who each shared part of their personal stories.

    I took notes to share with you what was said but to sum up each talk would take away from them all.  Instead, I’ll share what I felt the takeaway messages from the event were.

    Sexual abuse is pervasive, it is deeply damaging, and it is only by becoming educated that we can combat this horrific scourge.

    The first step towards protecting our children and community from sexual predators is understanding what the problem is.  Sexual predators are in every community, in every city and they don’t look like the pervert that you learned as a young child to stay away from – you know, the derelict wino with a bottle in a paper bag and grubby fingernails. They usually look just like the kind of person you’d trust your child with – they work very hard to cultivate this image because it’s this facade that gains them access to children.

    80 – 90% of abusers are someone the child knows.  To me, this means that a big chunk of our efforts and awareness needs to go towards making sure that adults or older children whom our children spent time with don’t have have unsupervised one-on-one time together.  Please read what I wrote here about the grooming process; it’s critical to understand how predators operate.

    Years ago when I was about 11, I remember a classmate sharing some information with me.  Being the age that I was, I heard what she described but wasn’t able to process what she was saying.  I now understand that she was raped in the public bathrooms on a class trip.  At that time, I told her to tell the teacher; she then shared with me that the teacher told her she was making it up and not to talk to anyone about it.

    This response sounds really horrible – and it is.  And unfortunately it’s very common.

    How in the world can we rub salt on the gaping emotional and physical wounds that abused children have already experienced by responding like this?

    We deny what is uncomfortable because it’s easier to look away than to deal with the uncomfortable truths in front of us.   It’s easier to blame the victim than deal with the abuser, easier to say a child is making something up than to believe that someone we think is trustworthy is capable of horrendous actions.  This is part of what this evening was about, to get people to stop looking away and denying the pain of victims and start recognizing and taking steps to limit the damage of sexual predators.

    The religious Jewish community has unfortunately historically been more supportive of abusers than victims, but this is changing as people become more educated. To make our communities safe for children we need to stop keeping sick and unhealthy secrets; we need to stop pretending that this doesn’t happen in our communities.  It does and it happens much more than it should because we’ve been focusing on looking good and keeping our image untarnished rather than on doing good and confronting evil.  Looking away empowers and protects predators and dramatically increases the risk for our children.

    After hearing all of this information, it leaves a parent saying, “Okay, we understand how serious this is, but how in the world can we protect our kids from something so pervasive?” It’s frightening and overwhelming – after all, we can’t watch our kids every minute and it seems that short of that there’s no way to keep our kids safe.

    A very helpful booklet filled with information was given out to attendees that covers prevention tips, red flag warning signs of potential sex offenders, boundaries, common tricks and lures, 10 proactive strategies for parents, facts and statistics, an explanation of grooming and more.  You can go to www.safelyeverafter.com to read more information.

    The part I personally struggle with about talking to my kids about this is not scaring them.  As a parent I have to do my part to proactively protect them, but there are situations when I’m not around that they need to know what is appropriate or what isn’t, and how to respond when something doesn’t feel right to them.

    I don’t want them to feel the world is filled with scary, dangerous people waiting to hurt them but I also don’t want to casually give over information and downplay it to the point that it seems I’m saying something unimportant.  So what to do?

    Rather than this being a bigger conversation that takes place a couple of times a year, I think an ongoing conversation is a way to discuss this in a way that doesn’t feel so intense and scary.  Talking about it in this way also increases the likelihood that our kids will better internalize the information.  Our focus should be on how to empower our kids with this information.

    I’ve always stressed to my kids to listen to their instincts even if logically they can’t understand why they feel that way.  I’ve also continually stressed to them to respect one another’s boundaries, that the parts of the body covered by a bathing suit are private and that if anyone tells them to keep a secret to tell me right away.   These are all included in the ten basic rules.  Something I haven’t done but after reading the handouts is to practice with them different responses they can use if they felt uncomfortable in a situation.

    Avivah