When Yirmi was born and we were told his Trisomy 21 diagnosis, my mind was flooded with thoughts. It was in the first couple of hours that I thought about a study I had read about regarding Weston Price who did a palate expansion with a teen who had Down syndrome. This teen was very cognitively limited, and the expansion created dramatic changes for him.
How could something that seems so minor make such a big difference? Since the center third of the face of those with T21 doesn’t grow properly, it compresses all the major head glands. This specifically can prevent the proper functioning of the pituitary gland and all its hormones, which has many, many consequences.
Yirmi was also born with a very high and narrow palate. I addressed my concerns about this holistically from the time he was four months old, taking him for weekly cranial sacral adjustments and requesting work specifically on his face and inside his mouth. I stopped those appointments about the time he was three, around the time we moved to RBS, since I didn’t find someone I was comfortable continuing treatment with.
For almost six years, from that first night I was sitting in the waiting room processing our surprise birth diagnosis, I’ve been thinking about palate expansion. But I’ve delayed a visit with an orthodontist because frankly, not only is it a significant expense, it’s very tiring to have to advocate and explain all the time. I learned of one orthotropist in Tel Aviv and considered making an appointment with him, but decided to try my luck with local orthodontists first.
For several weeks, my to-do list included calling to schedule a consultation. Every single day, for weeks. And every day, I’d push it off. I finally made the call a few weeks ago and the night before our consultation, I emailed a list of links to studies and research that had been done regarding palate expansion and children with T21, with a request for the orthodontist to look at it so we could discuss it when we came in.
I had this funny feeling when I walked in to the office that everyone knew who I was, and not because they read my blog! I was definitely wondering if my email had been discussed among the staff. When I left, one secretary commented to me, “Good job with that email!”
I was impressed with the orthodontist, who told me he had read everything I sent him, and was ready and willing to discuss it all with me. He wanted to ascertain that I understood that not every child is going to experience every single benefit, which I know. I told him my specific hopes for Yirmi having the expansion, and he said that all of those were reasonable.
The good news is he’s agreed that Yirmi is a good candidate for palate expansion, despite his young age. (Palate expansion is usually recommended for a later age, but for the above reasons I feel he’d benefit by having it done as soon as possible). We’ll need to wait a little longer until his molars are a bit bigger, so the device will be able to be anchored to them.
I was reflecting afterwards about how I created tension for myself, just by telling myself how difficult it was going to be to find an orthodontist to agree to work with us. Don’t we all do that, so often? It really couldn’t have been a more pleasant and positive meeting. I hope that when we’re ready to do the molds that everything continues to go well. But for now, the first big step forward in this direction has been taken, and I’m so relieved and grateful!
Avivah
Edited to add: I linked to this in the comments but am linking here so you can easily access this summary of the benefits and some other information put together by Dr. Erica Peirson.
