Category Archives: parenting

What you think about someone affects how you see them

In a recent parenting class, I talked about the power that a parent’s thoughts has on a child.  Without saying a word, the way we think about our children affects how we act toward them and in turn affects how they respond to us.  To paraphrase the quote of Norman Vincent Peale above: “Change your thoughts and you change your child’s world.”

The way we interpret what we see in our children from a young age gives substantial form to the people they become.  Do you see your child who flits from one activity to another as impulsive or creative?  When he pulls down all the books from the shelf, is he being destructive or curious?  When he would rather do something that interests him than a task you ask him to do, is he lazy or passionate about the things he cares about?

In the following short video, six different photographers are asked to spend ten minutes getting to know a man in order to do a portrait of him.  Each photographer is given a false story about him.

The result?  Six portraits that are portray a completely different person.

I love the quote at the end:  “A photograph is shaped more by the person behind the camera than by what is in front of it.”

This is so, so true.

One of the most important jobs we have as parents is to mirror to our child his potential and awesomeness – especially when we aren’t seeing that in the moment!   We have to believe in our children until they’re old enough to believe in themselves.

In a different class, an attendee told me she felt this idea was in conflict with what I shared about the importance of accepting your child for who he is.  To me there’s no conflict.  You accept your child for who he is right now.  That doesn’t mean accepting a limiting definition of him in the present.  It means you see who he is right now in the most positive light that you can, and you also believe in his potential to grow beyond what you see in this moment.

Not only does looking for the good in your child impact him positively, it also impacts you positively! As you view your child in a way that gives you hope and joy, you’ll find yourself parenting from a place of increased calm and connection.

Avivah

“What kind of parents neglect their child long enough for him to enter a gorilla enclosure?”

My latest article is up at the Times of Israel – “What kind of parents neglect their child long enough for him to enter a gorilla enclosure?”

This is my take on why parents bashing the mom whose child fell into a gorilla enclosure this week at the US zoo need to set aside the judgment and find some compassion instead.

Avivah

 

Why trusting your children helps them become trustworthy

When a parent tells me her child isn’t trustworthy, I ask her: “What does your child have to do for you to trust him?”

Often the answer is, “I can’t trust him until he earns my trust.”

It’s understandable that a parent feels afraid to trust a child who has disappointed her in the past.  At the same time, treating a child with distrust (even nonverbally) isn’t a good recipe for raising a trustworthy child!

Recently my ds17 went to the army for his mandatory initial check-in.  This is comprised of academic testing, a physical and testing for psychological stability.  To determine how he gets along with people, they began with questions about his relationships with his parents.

“What happens when you want to do something and your parents don’t let you do it?”  

Not wanting to sound like a goody goody, he tried to come up with an example but he couldn’t think of a time that had happened.  When he was pressed for an answer he still couldn’t think of an example, so they told him to make up something.  🙂

When he later told me about this, he asked me if I remembered a time in the last couple of years that I didn’t let him do something he wanted to do.  I also came up blank.  Is that because I’m a permissive parent and I let him do what he wants?

Hardly.

It’s about trust.

trust

Here’s our informal process for discussing a request.  He lets me know there’s something he wants to do or somewhere he wants to go.  I listen to what that is.  Then I ask questions to clarify.  If there’s something I’m uncomfortable with, I let him know that overall it sounds fine but I’d be more comfortable if xyz were taken into account. He takes into account my feedback and acts accordingly.

I don’t have to control him.  I don’t need to assert my will.  I respect him as a mature and responsible person and communicate with him accordingly.  I presume in every interaction that he’s trustworthy.  And he really is.

How does a child become trustworthy?  And when do you begin to trust him?

Not by making him jump over or through your ‘trust’ hoop a certain amount of times.  (You know what I’m talking about. Some of you have been doing this for years with your spouse, too!)

Instead, you give your child the message that you trust them.  Then you give them opportunities to make independent choices.  After they’ve made their choices, let them know what you appreciate about how they handled that opportunity.  This starts at a young age and the choices get bigger as they get older.

As they get older, let them go somewhere by themselves.  Maybe it’s the neighbor across the hall to return a bag of sugar, the park next door.  Let them do some shopping for you.  Give them a list and rather than specify what brand of the item, tell them to get the one that he thinks is the best buy.

Sure, sometimes they make mistakes.    Maybe you sent him to the store for bread and milk, and he used part of the change for a chocolate bar.  Should you accuse him of stealing, or tell him that now you don’t feel you can trust him?  Or  that you won’t let him go to the store for you again unless you’re with him or until he shows he can be trusted?

No.  You’re hurting both you and your child in the short and long term with a response like that.

Have you ever had someone who didn’t trust you?  Even when you tried your best, they refused to notice your efforts and continued to fixate on and inflate your failings.

How did that make you feel?  Like trying harder?  Or did you give up, knowing that whatever you did wouldn’t be enough?

Maybe you did try again and again.  Are there people whose approval and trust you’re still trying to win, even after decades of unsuccessfully trying?

When you give your children the message, either verbally or through body language, that you don’t trust them, you don’t give them something to live up to.  Don’t ever tell your child: ‘I can’t trust you’.  Or, ‘I’ll trust you when you earn my trust’.  You might feel this way, but this doesn’t give a child any incentive to try harder and do better.

Our children reflect our thoughts and feelings about them.  Show them you believe in them, that you think they’re responsible, hardworking, trustworthy, able to make decisions – and then give them the opportunity to prove you right!

believe

They are going to make mistakes – it’s all part of the process.  When your child makes a mistake, give him the benefit of the doubt.  And give him another chance, perhaps with clearer expression of your expectations or boundaries.  Pay attention to the ways your child is trying to please you and let him know you notice his efforts.  Don’t let his successes be crowded out by bigger irritations and frustrations.

Our children are a reflection of the way we think about them.  Let’s remember that power and use it wisely!

Avivah

Gemiini – an amazing resource for kids with communication or speech delays

Since I like to try things out before recommending it to you, this post has been a looong time in coming!

My three year old has a speech processing delay called apraxia.  Apraxia in simple terms apraxiameans that although the child knows what he wants to say and understands everything, the message gets scrambled somewhere in transmission between the brain and mouth.

This means that a child with apraxia has to work much, much harder to speak and it takes much longer.  I suspected ds3 had apraxia when he was 18 months, but the speech therapist told me he didn’t.  At his 2 year old speech assessment, I received a letter in the mail a few weeks after our in-person meeting and discussion (when nothing was mentioned to me) and it was only then that I saw he had been officially diagnosed with apraxia.

Based on what I had learned about apraxia I knew that weekly speech therapy was likely be inadequate to help ds3 learn to speak well.  So when two or three months later in December 2104 later I learned about Gemiini, I was cautiously hopeful.

Gemiini is a video modeling program designed to help children with autism that was getting breakthrough results.  What was exciting to me was that someone on a  Down syndrome group shared that she had started using it a month before with her child with T21 who didn’t have autism and was seeing significant improvements.

I took a month to look into it before signing up, and began using Gemiini with Yirmiyahu in Jan. 2015.  We’ve been using it since then on a regular basis.  I’ve been meaning to write about it for quite some time, but now that I just re-registered for a new subscription figured I shouldn’t keep you in the dark any longer!

Gemiini has a huge video library of words, phrases, social situations, etc that your child can watch repeatedly.  This is really important for a child with a speech delay or social delay, as it gives them the opportunity to see what the word means, how it’s used and there’s as much repetition as your child needs.  It’s incredible to me how many aspects there are to this program (eg learning to read) and how many ways it can be used, in different situations and at different levels ranging from beginner to advanced, for people of all ages.

When we began Gemiini, Yirmi had almost no sounds.  His sign language and ability to act out what he wants to tell us is excellent – someone in the park said a few days ago she’s never seen such a young child able to so clearly communicate without speaking – but spoken speech is obviously important.  Soon after we began using Gemiini, I saw him moving his lips as he watched the videos, trying to copy the word he was watching.  Since then he’s begun saying simple one syllable words and word approximations, which is very exciting.

Generally screen time should be limited or even avoided for young children, but since Gemiini is actually helping to heal the brain, it doesn’t have the negative concerns associated with screen time.  I use Gemiini with Yirmi for up to an hour a day, up to six days a week.

I spoke with a blog reader a year ago and mentioned we were using this program. She told me of a friend with a child with Trisomy 21 who was nine years old and nonverbal, and asked if the mother could contact me.  That person did call me and I told her about this program. Two weeks after starting Gemiini she called me back , and with emotion told me her daughter – who they assumed was unable to speak – had begun to talk.

Gemiini is a company with a huge heart and sense of mission.  It began with a mother of a large family being told her three year old twins were autistic and that one was beyond help (they’re now about 19 and in college).  She spent endless hours researching a way to help her own children and this video modeling approach now helps many, many children.

The program is a paid monthly subscription, with an option to try it out for a month and even have a free 20 minute consultation with one of their representatives to discuss how to use the program for best results for their child’s specific needs. They don’t want children to be denied this help because of financial constraints and finances and as such offer scholarships to make the program accessible to everyone.

In the word of speech therapy, this program is a huge advance and for me and many other parents, offers tremendous hope. It can be used in conjunction with a speech therapist or as a stand-alone program.  (In case you’re wondering, I don’t receive any compensation or benefits by mentioning this.)

The website is Gemiini.org and you can get more information there!

Avivah

Leadership Parenting classes beginning soon!

Now that vacation is over and life is getting back to its hectic norm, I’m back to supporting other people’s families!

The woman I co-led a workshop with several weeks ago is opening a women’s mind and body wellness center here in RBS next week.  I was asked to give parenting classes at the center and after seeing the wonderful space she has planned there, I’m delighted to be able to offer my classes in calming and peaceful mini-retreat environment that will enhance learning and renewal.  It’s going to be wonderful!

ProfileMy new local Leadership Parenting series will begin soon and here are the details!

Leadership Parenting is based on six foundational concepts:

Connection, compassion, courage, calm, clarity and correction.

Leadership Parenting teaches you to:

  • Trade the illusion of control for powerful parental influence.
  • Become a leader in your home.
  • Enjoy your children in a way you never have!

Raising my children has been an incredibly growth-filled experience that has enabled me to become more and have more than I ever thought was possible.  I know that sounds like hyperbole, but it’s really true.  And it’s from that place of gratitude and passion that I work with other parents to help them build the kind of family that will be a source of deep fulfillment for them.

When your family life isn’t flowing well, it doesn’t matter how successful you are in other areas – it drains your energy, causes you to doubt yourself and you feel resentment and stress instead of joy and purpose.

There’s a lot of conflicting information available about how to create a strong and connected family and in the earlier years of parenting I got caught up in that.  Not knowing when to be firm, when to give in, then questioning if I was being too firm or too loving.  Were my kids taking advantage of me?  Was I being responsive enough?

It took years of making mistakes (usually based on some expert’s advice) and learning from those mistakes to clarify what was working and identify the underlying principles behind the consistent positive results in our family.

That’s why I started this blog (almost ten years ago!) and do the work that I do – to help parents cut through the mental confusion so they can invest in their families in a way that will give positive results long term.  Why should you have to make all those mistakes yourself if you can avoid the potholes in your parenting journey?

For local readers, here are the details about the upcoming classes. The series will be 10 weeks long, and take place on Wednesday evenings from 8:30 – 10 pm, beginning May 18.  Location: Be Well Women’s Mind and Body Center, RBS. The series will be 350 shekels.

As always, I welcome those who are interested in getting a sense of my approach before committing to join us for the first class for free.  Contact me for details if you’d like register or connect!  avivahwerner@gmail.com.

(To non-local readers – ie, most of you! – eventually I’m going to figure out the technical stuff to make this available to you, too.  Please have patience with me and my time limitations!)

Avivah

A new family photo for Spring 2016!

Taking family photos are so fun, aren’t they?

No, not really.  It’s not easy to get everyone in our family together for a family photo.

That’s why our last family picture was in June 2015 for ds13’s bar mitzva.

June 2015
June 2015

The one before than was April 2014, less than three weeks after my face was burned.  It wasn’t an accident that I posted a small picture that I digitally resized to make it hard to see clearly how blotchy I looked!  We tried to take another one six months later but my skin tone was still so uneven in photos that I deleted every single picture.

April 2014
April 2014

This year, I insisted to my kids, we were  going to take a family photo during Pesach vacation!

I planned to do this on erev Pesach – yes, really, I thought this would be quite relaxed because everything would be done so far in advance (try not to fall off your chairs laughing!).  But I neglected to make sure that everyone in my family got a memo of my plans and some of them thought that sleeping before the seder would be a more bonding experience.

Actually, I agreed with them, and so I let them sleep.  We completely enjoyed our seder with all of our family members being well-rested and fully present.  And we took a picture  a couple of days later instead.

Unfortunately that morning ds3 woke up with a cold and he looked so miserable in almost every  picture. I’m grateful that we ended up with a couple of pictures that we like, and I’m optimistic that we can get another family photo in less than a year from now with ds3 looking like his cheerful self.

So here we are!

April 2016
April 2016 – from l – r, back row: ds8, dd21, ds22, ds17, ds13, dd15, dd19, ds10;  l -r, front row: ds6, dh, ds3, me

Avivah

A fun day out with almost all of our children

What a busy day!  We’ve enjoyed spending time with our family but other than a trip to a local park for a family game of baseball, we hadn’t done much in the way of outings this  vacation.  I think today we made up for it by being out all day long!

This morning I learned that the National Police Academy is open to the public and has demonstrations during chol hamoed.  Since dd21 had made plans in advance to be in Jerusalem today she couldn’t join us but I told everyone who wanted to come to quickly get themselves ready for a trip – and I was delighted when all of the other kids decided to come!

Dd19 and ds3 with the toy police car he was given
Dd19 and ds3 with the toy police car he was given

We enjoyed the special demonstrations (krav magav and trained police dogs) and afterwards we went through the exhibits at the academy – it was interesting and now that we know where it is and how to get there,  we can go back when it’s quieter and we can take more time.  It was really, really crowded!

Dd15, me, ds6, ds8, ds10
Dd15, me, ds6, ds8, ds10
Ds8 on police motorcyle
Ds8 on police motorcyle

The bus to the police academy only comes every two hours, so we made very sure to be at the bus stop on time!  The ride there and back was scenic and since we’ve never been there before was part of the fun of the trip.

Ds3 hanging while bus was waiting to depart
Ds3 hanging while bus was waiting to depart

Afterwards dh needed to get back to work and since he was the only one at the office, we were able to visit his work space for the first time.  It’s really nicely set up and the comfortable furniture and pool table made it a fun place to visit!

Ds10 and ds17 playing pool
Ds10 and ds17 playing pool
Ds13 relaxing
Ds13 relaxing

After being out for hours, everyone was still smiling and enjoying being together!

Ds3 and ds6
Ds3 and ds6

The following is a very rare picture – I can’t think of when we last had all our boys – just the boys –  in a photo together.

All of our boys together! Ds22, ds8, ds6, ds3, ds17, ds10, ds13
All of our boys together! Ds22, ds8, ds6, ds3, ds17, ds10, ds13

For those of you who have been celebrating Pesach, I hope you’ve all been enjoying your time with your family, too!

Avivah

Pesach is coming – are you taking care of yourself?

As soon as Purim ended, there was a palpable sense in the air that Pesach was on its way.  Going into a major supermarket just a few days later, one could already sense the atmosphere shift and as Pesach gets closer, you can feel the tension and stress and anxiety building.

A couple of weeks ago I co-led a workshop on how to go into Pesach without stressing yourself out.  The point about planning ahead won’t be of much value now, a few days before Pesach. But the other ideas are still applicable.

1) Perspective – what does Pesach mean to you? What kind of atmosphere do you want to have in your house? A person can get so busy doing the preparatory work that they don’t even think about why they’re doing it all!

My goal is to go into Pesach calmly and pleasantly. I want my family members to have positive associations for this time of year.  I want to be awake and fully able to enjoy the seder along with every other person in my family. I want to remember the spiritual messages of this time of year and feel inspired and connected to myself and to G-d.

2) Know what is chometz – Differentiate between spring cleaning and Pesach cleaning. Dirt is not chometz.  I’ll repeat that. Dirt is not chometz.  Here in Israel it’s beautiful to see families everywhere getting ready for Pesach but seeing others doing things you don’t do can easily lead you to feel inadequate if you’re not doing the same things on the same schedule.  Remember your goals and choose what to do accordingly.

3) Sleep – don’t think that you’re getting ahead by sleeping less to get more cleaning done.  No, no, no.  At the most potentially stressful times it’s more important than ever to get enough sleep. Everything in life looks better and more manageable with adequate sleep.  When I start to feel negative, it’s almost always related to being overtired and I need to get myself into bed, pronto!

I’m trying to drum this into my older kids in their late teens and early twenties, who are all very busy right now with work and school.  I remind them that when they’re rested they can get much more done the next day.  Do they take my advice?  Well, they tell me theoretically they agree with it! 🙂  And they also tell me they appreciate my encouragement to take it easy, do less and sleep more.

It’s so much easier to be a nice person to live with when you’re rested.  My priority for this week is to get to sleep at a regular time every day, take a nap daily, and to eat well.  I schedule it into my planner at the beginning of each day and make these things a priority before anything else. Really.

4) Nutrition – if you’re keeping yourself going on caffeine and grabbing whatever quick carbs you can to get through the day, your blood sugar is going to be all over the place and you’re not going to feel emotionally stable.  You’re going to crash. Make time to physically refuel with good quality foods.  I know, you don’t have time for this, right?  You deserve to make time for this because you are worthy of being taken care of lovingly.  And it doesn’t have to take a long time.  An egg with butter and vegetables  will keep your keep you full and your blood sugar stable.

For kids, too, make sure they’re getting protein at every meal and at snack time.  So much misbehavior is because kids get too hungry and out of sorts.  Don’t fall prey to the Pesach snacks that are everywhere – this will almost guarantee that your kids will be more reactive and less responsive to your requests.  Sandwiches with sweet spreads, cookies and chips won’t give your child’s brain the building blocks they need to stay calm and positive.

Keep it simple – hard boiled eggs, some carrot sticks and hummus makes an easy lunch.  Peanut butter on celery sticks, cheese or nuts make easy snacks.  I keep lots of vegetables and some fruits on hand for the kids to snack on as well.

5) Music – music is your ally in creating a cheerful and upbeat atmosphere!  There is so much great Pesach music that will enhance your home environment while getting your kids prepared for the seder by knowing the songs that are sung that night.

6) Connect – Take time to connect with your kids before they misbehave. Being proactive on this front will make a big difference.  Again, I know it seems like there’s not enough time but believe me, your children will make themselves heard and you will need to take time to deal with whatever behavior and conflicts come up.  Investing the time upfront to preempt the issues is a very wise use of your time.

Most of all – be kind to yourself.  Don’t set high standards that will lead you to feel inadequate.  Keep it simple.  If your house doesn’t sparkle, your home can still be ready for Pesach.  If your menus are simple, your family can still enjoy.  When you treat yourself kindly, it transfers to how you treat everyone around you.

This is not the mother you want to be!
This is not the mother you want to be!

Taking care of yourself is the absolute highest priority at this time. Give yourself the emotional and physical support that you need to feel good. A happy mother is a gift to the entire family!

Avivah

Blasting through pressure by building a family team

Purim is a few days behind us and it was wonderful!

Our front door - welcome!
Our Seuss themed front door – welcome!

The day before Purim I was feeling quite pressured by my to-do list – it felt a mile long.  It was a mile long.  And it was obvious to me that I couldn’t do what needed to be done by myself.

Getting it all done meant pulling everyone together to work as a team, and our family team was amazing!  This is not something that happens by itself.  At busy times it can feel like there’s no time to get everyone galvanized and organized because it means slowing down.

But taking that time to slow down and make a plan with your family means once you’re ready to take action, you can zoom forward like a turbo-charged sports car rather than rushing, stressing and resenting those around you for not doing enough.

We had decorating going on, we had cooking going on, we had cleaning going on, we had mishloach  manos preparation going on, and we had shopping going on!  All at the same time!  Not only did the Werner team get everything done, but we had fun connecting while doing it!

Dd21 did a wonderful job planning a double theme of Dr. Seuss and cowboys, voted on by the younger boys.

The Seuss wall

The Seuss wall

Truffula trees and Sally looking out the window
Truffula trees and Sally looking out the window

On the opposite wall, the cowboy theme:

The jail, sheriff's office and trading post
The jail, sheriff’s office and trading post
The grub table
The grub table

A neighbor not only asked if she could bring her children who were all dressed as cowboys to do a photo shoot using dd’s decorations as props, she later brought her guests to show them our decorations, too!

Here’s one of our cowboys.

Ds9 dressed for Purim fun!
Ds9 dressed for Purim fun!

We had twenty four people for our Purim meal. One table was Seuss themed.

L to R: ds13, dd21, me, ds9, dd15, dd19, ds17, dh, ds8 ; front - ds6 (missing ds3 and ds22)
L to R: ds13, dd21, me, ds9, dd15, dd19, ds17, dh, ds8 ; front – ds6 (missing ds3 and ds22)

The second table had the cowboy theme.

Cowboy table
Cowboy table

Yirmi was napping when we took the family photo above, but he woke up with plenty of time to participate.  I’ll make up for leaving him out of that photo by sharing two photos of him with guests. 🙂

Yirmi having fun with a favorite guest
Yirmi having fun with a favorite guest (who also visited him in the hospital after his surgery)
Yirmi with another guest - he charmed the girls, too!
Yirmi with another guest – he charmed the girls, too!

Naturally the menu was cowboy themed, and dd added labels to the ‘grub’ buffet table to connect it to the Suessian theme.  We had: fresh rolls, cornbread, chicken wings,  franks in blanks (‘Go, hotdogs, go!’), mini triangle borekas (‘There’s a wocket in my pocket’), fresh salad, coleslaw, a veggie platter (‘truffula sticks’), roasted tomato dip and chummus.

Not shown: rainbow cake
Not shown: rainbow cake

Dessert: banana bread, rainbow cake, red devil cupcakes with blue frosting, brownies (cowpies :)), hamantaschen and popcorn.  (In case you’re wondering, everything was homemade except the dips. )

Ds22 surprised us by stopping in for fifteen minutes right after we ended our meal.  He had last minute plans that brought him to our area for a very short time.  When I hugged him and told him how happy we were that he was able to be there, he told me he’s been to a number of homes in the last two weeks (he’s been helping to fundraise for his yeshiva with friends) and there have been a lot of homes with nice atmospheres.  Some have been more exciting than ours, but, he said, our home had the nicest atmosphere of them all.

Of course he’s biased because it’s his home and family, but still, you can imagine it was nice to hear that!

If you’d like to explore ways to build your family unity or any other concern related to your family, be in touch via email at avivahwerner@yahoo.com to set up a complimentary 20 minute consultation.  Let’s talk about how I can support you in creating the home environment you want!

Avivah

Does how you treat your child affect if he is ‘high functioning’?

In response to my last post, a reader asks:

“unfortunately, not all Down children are so beautiful and cute. I mean, you can hardly even tell that Yirmi has it! What would you tell a mother who’s child is not as charming?!”

A person’s value isn’t based on how charming he is!  Yirmi being who he is now didn’t keep the doctors after he was born from repeatedly asking me why I didn’t do the prenatal tests that would have allowed me to abort.  So cute or not, to them he had no more reason to exist than any other child with T21.

I would continue to say that a child is a child and deserves to be loved and valued for who he is, as he is.  Every single person is beautiful and a genius in some way and that means all children – with or without Down syndrome.  We need to broaden our mental picture of what beauty is. Is there a mental ceiling on what a child should look like or act like for his parent to be willing to embrace raising him?

(To all of those reading: please consider changing the way you refer to children with Down syndrome in a way that defines them first and foremost as a person – Yirmi is not a ‘Down child’ and neither is anyone else who shares his chromosomal makeup. Here’s something I wrote in which I explained my perspective. As the wise Horton the elephant of Dr. Seuss fame says, “A person’s a person no matter how small.”)

Another reader responds:

“I’d also add that what is normally seen as a reason for despair in parents of “different” children is often actually a consequence of it… That is, Yirmi probably presents as someone who hardly looks different just because the whole family always accepted and appreciated him for who he is rather than let the difference create a distance. In times past, children with conditions such as T21 or autism would be locked away and ignored, so of course they’d never realized any of their potential. It took inexcusably long for medical profession to realize that the same would have happened to neurotypical individuals if they were placed in same circumstances.”

I completely agree with this sentiment.  The more you treat someone like one of the group, the more they act like one of the group.

I did a LOT of thinking for the first couple of days after Yirmi was born – all I did was think, actually – and one thing I felt in my bones in those early, early days was that as he got older people would look at him and whatever he accomplished in his life and tell us we were just lucky.

Children are unquestionably born with different abilities, but once they’re born I don’t think luck plays as big a part as is generally believed.  You work with what you have, you support what you see in your mind even if you don’t see it in front of you yet.  If I would have treated him as a child with the limitations I was told he would have, I’m sure he would be very different.

For example, Yirmi didn’t look me in the eye for six weeks.  That’s a long time for a newborn – my other kids looked me in the eye the day they were born.  So I could have assumed he was autistic (which ten percent of children with T21 are) and become discouraged that I was one of the unlucky parents who got a ‘lower functioning child’.  Then I would have treated him with those low expectations and he would have responded as such.  Or I could have thought, he has his own time schedule and believe he would do it when the time was right.  And he did.

That line of thinking follows all the way through the years when raising children – and this is true of raising any child.  They will reflect your belief in them.  A parent has to learn to see past the current challenges or limitations and trust the developmental process, especially when your child is on the slower side of the developmental curve (emotionally, socially, intellectually or physically).

Back to issue of social supports.  Children with Down syndrome are strong visual learners.  If a child spends his days with a group of children with disabilities, behavioral issues and emotional issues, he will copy those behaviors.  This is why so many children with T21 have autistic behaviors when they aren’t autistic – because they copy the behaviors of those in their special education programs.  If a child is surrounded by neurotypical children acting in a socially appropriate way, that becomes a model for him.

How a child acts is less about his disability (though it undeniably plays a part), and much more about who he is patterning himself after and what is expected of him.  Yirmi behaves similarly to his siblings and the other people in his life.

Ds8, ds3, dd15

You won’t be surprised that I’m opposed to the routine isolation of children with disabilities in separate classrooms or social situations.  Inclusion been shown to be highly beneficial to the child with a disability as well as the neurotypical children in the classroom, and that this is something parents have to fight for rather than an accepted norm is simply horrendous.  It’s just wrong on every level -we as a society are creating very limiting long term realities for people with disabilities.  It doesn’t benefit individuals, families or society at large.

Avivah