Category Archives: Foster Care

Our home visit with the attending social workers – foster care

There’s a lot that’s been going on behind the scenes and I’ve debated mentioning it or not, because it’s possible nothing will come of it. I’ve decided to share our process of being approved for foster placements, and wherever it leads us, it leads us. If I wait until everything is settled to share about this, I’m likely to forget lots of the details and to be too busy with whatever stage we move into to write retroactively about our experience.

Brief background recap: A couple of months we were approached about fostering a young boy, who has a sister for whom a placement was found in Yavneel. The hope was to find two families in the same area to take each of the siblings so they could maintain a relationship. We initially said no, then went back for more information. After much discussion, we offered to take both five and a half year old twins, which so much took them aback that they thought we had misunderstood their request was to take just one.

Once we agreed, I expected that things would move much faster than they have, but there have been an unusual amount of delays in moving this situation forward. After seeing all of this unfolding, I have so much sympathy for social workers who have to work within this incredibly inefficient system. I can see how frustrating and difficult it must be for them.

Weeks ago, our first home visit was cancelled a day or two before it was supposed to take place. The necessary pieces weren’t coming together, despite lots of effort and advocacy and even heavily leaning on legal authority (by social workers, not me – I mostly sat back and let things unfold as Hashem wanted). At this point, the school and transportation have been arranged, which was necessary to have in place before they would come to our home to check us out.

And so, today we finally had our home visit, a critical step to be approved for fostering specific children.

Since my husband flew to the US yesterday, the meeting was between me and four social workers: our social worker, the head social worker of the foster care agency, the social worker representing the parents, and the social worker representing chok noar from the parents’ area in the north (I don’t know what the equivalent in the US would be – literal translation is ‘Youth law’).

They were here for two and a quarter hours. My expectation was that they would be very interested in seeing our home. They were, but that was the secondary goal. Most of the focus was on getting a sense of who I am, to know who will be raising the children. As they told me, these children have experienced a lot of trauma and they want their placement to be successful.

The conversation jumped pretty quickly into what some would consider challenging conversation. Basically, I was told there were very difficult behaviors involved and asked what made me think I could handle them. (My social worker later expressed concern on how this had been for me, but I recognized the concern that was behind the questioning and it didn’t bother me at all.)

I was interested in how the temporary foster home is dealing with it, so I redirected the first somewhat edgy line of questioning and asked about that. I was told that they’re not dealing with certain behaviors at all. I learned more about the current foster family, which was something important for me to know since I want to understand as much as possible where the children are coming from and what they’re used to.

I told her honestly that I have concerns about the challenges, that I’m sure that there is much more trauma than what we’ve been told about and that the behaviors will be worse than we were led to believe (the social worker concurred that this is likely), and that I hope we have the ability to support them. I also later told two of the social workers that I’ll make no long term commitments and if I feel that the safety of any of my children is being compromised by these children, the needs of the children I already have will take priority.

We went on to discuss our family, our approach to parenting and lots of other stuff. It was an interesting and positive conversation.

I was told that they had already checked our family out with various people, and gotten glowing feedback. I had no idea when I was interacting with various people in the local education department over the last three years that they’d one day be telling social workers their opinion of me. That was a pleasant thing to hear.

We ended with a quick tour of our home. Two of the social workers had to cut it short since they had another appointment, so they only looked at the first floor of our home. One told me the most important thing is that they see the room where the children would stay. The other two stayed to see the entire home, which I think is good because it gives a fuller and more accurate picture of our accommodations.

The next step will be to go back to court and petition for the children to be placed with us. I then learned that a country-wide search to find other foster families that were willing and able to support these children has already been done but no other family is available. This search needed to be done because of the opposition of the legal advocate/court representative, who wanted a family who isn’t living in Yavneel (I was told there’s a negative association with this area), isn’t charedi (because the bio parents aren’t religious), and is living in close proximity to a suitable school (so they don’t have to travel to school).

I was told it can take between a week to a month for this to come to court. However, it seems likely it will be closer to a week. If there is court approval for a placement in our family, then we’ll begin the transition stage in which we and the children begin getting to know one another over the course of several meetings.

While the further we go with this process, the more likely it is that the placement will be made, no one will make any assurances or predictions of what will happen. We’re making no assumptions, and wait and see continues to be our position.

Avivah

More about fostering and being generous

In my last post, I shared an update about the foster care placement we were approached about. I mentioned it here when I did because after a month of being involved in this situation, the placement seemed highly likely and I wanted to share about the process we were going through. It was a question of ‘when’ more than ‘if’.

Today the social worker called to update me that they’re in a situation they’ve never been in before: they’re unable so late in the school year to find any school within an hour’s travel time from our home able to accept him, even with legal pressure brought to bear on the schools. (After telling me he can’t travel, they went back to looking at schools further away.) While it seems obvious that the easiest and best thing would be to leave him in school where he is, which is less than an hour away, there’s a funding issue that precludes that possibility.

Since they can’t find a school until the coming school year, they’ve cancelled the home visit that was supposed to take place a couple of days from now. Instead, they are going back to court to overturn the injunction that the child needed to be removed from this foster home, and request he be allowed to stay there. If that fails, they are talking about beginning a country-wide search to find a different foster home (close enough to a suitable school, presumably), since their search in the northern part of the country only found us.

To my mind, this is all upside down and doesn’t put the child and what is good for him at the center at all. It doesn’t seem efficient, logical, economical or prudent. But my opinions have no bearing on anything.

What this means is that now, the placement with our family is being placed very far on the back burner and as far as I’m concerned, it’s off the table. While I continue to be in touch with our social worker discussing potential solutions, there’s too much that can change between now and September for me to assume it will happen.

My take on this is, if something is supposed to happen, Hashem will make it happen. And if it’s not meant to happen, it doesn’t matter how much it looks like it should happen – it’s not going to happen.

I learned this lesson very clearly when we were involved with Baby M, when it seemed obvious to everyone involved we were the perfect family for her. Then that didn’t happen. When we got the call about ds6, it seemed highly unlikely it could work out; time and time again, rules were bent and changes to official procedure that had never been made were made to faciliate his joining our family.

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There were some very nice comments to my last post about me being a very generous person, and I want to respond with a bit of perspective.

A few months ago, I commented to my kids that I’m not a generous person. My children didn’t agree with me, and thought I was being overly critical of myself. What I meant, and explained to them, is that there are areas that I’m more easily able to give, and there are ways that are difficult for me. I’m very generous in some ways. And in others I’m not.

Some people can have people in and out of their houses all the time. I can’t. Some people have no expectations of guests, and willingly host regardless of if they like the person. I won’t. Some people don’t care if people show appreciation for what they do. I do. Some people generously share all of their possessions and time with others. I don’t. I could go on an on with examples.

I have a soft spot for children whose homes aren’t nurturing places. Part of the motivation for my work as a parenting educator comes from that. It hasn’t found expression in mentoring troubled teens or starting a halfway house, but mostly by trying to make my home a positive place where I hope our children feel loved, and helping others to do the same.

When I was asked about this foster placement, I was quick to say no.
My two youngest sons are moving out of the very intensive stage of supervision that I’ve been at for a very long time. After almost thirty years of being there for my children around the clock, I’m now able to enjoy some quiet, kid-free time in the mornings, time I can use as I want. That’s very precious to me.

The idea of adding another child who needs constant supervision really didn’t appeal to me. I didn’t have readiness to give up that long awaited quiet and space in my life. I certainly had no interest in becoming more involved with social services.

Having made it clear I wasn’t interested, I began to think about it without any outside expectation or pressure. I thought very much about what would be necessary to parent this child, what it would require of me physically and emotionally.

Here’s a very important detail that I haven’t shared. I mentioned he has a sibling for whom a possible placement was found in Yavneel and that’s how we were originally contacted, as a potential home in the same area. The sibling is actually a twin. It deeply, deeply pained me to think of two siblings who had so much taken away from them, now being separated from one another.

Though the social worker didn’t ask us to consider taking them both – they don’t expect to find any family willing to do that – the question I asked myself was if we could bring them both into our home. Though you might think that would have been so overwhelming that it would make it even less likely a possibility, somehow the sense of mission it created in me was significant enough for me to be willing to give up my long awaited quiet.

When I looked at what would be involved, I could see that our lives had prepared my husband and I for this. That’s not to say it wouldn’t be very challenging. We were both very realistic about this. But we felt it was something that we were being called to do. So the placement that we have actually been discussing has been for both of the children, though I’ve referred in my writing here to only the child we were initially asked about.

There are lots of other things we could have been asked to do that wouldn’t have felt like a fit for our strengths, and we wouldn’t have been willing to extend ourselves to do it. As I said, there are ways I’m able to give and ways I’m not.

That’s the back story about what motivates me and activated my generosity in this situation.

Avivah

Foster care update

A few weeks ago I mentioned that we were approached regarding a foster care placement for a four year old boy with special needs.

After expressing our interest in learning more, we had a two hour meeting with our social worker, the child’s social worker, and the supervisory social worker.

We got a detailed description of the challenges this child is facing, which are significant. (And he’s actually five and a half.) We also learned about the legal process involved.

Since this isn’t an emergency placement but transferring from a temporary foster home to a long term home, there is a getting-to-know-you process. This entails four visits by us to the temporary foster home an hour away, initially with me and my husband, later to be joined by our children. There would then be one visit to our home. All of this ideally takes place within ten days. Then the placement would take place.

We followed this meeting with much discussion between my husband and me, and then included our teen boys in the conversation. We all agreed this is something we can do and would be willing to do. I told her we’d be willing to have him come the first week of March, but that it couldn’t be right before Pesach.

Several weeks have gone by since then, and because there’s a bureaucratic process involved, slow is the name of the game.

I’ve been in touch with our social worker for updates and after hearing one particularly exasperating update, I told her I don’t know how she can stand working in a system that doesn’t put the best interest of the child ahead of everything. She admitted that sometimes she wants to pull her hair out but it is what it is.

Where I live, there are very few educational options for children of all ages; not regular ed and certainly not special ed. (His special needs result from growing up in an emotionally impoverished home, not a genetic birth diagnosis.) That’s why ds10 and ds6 travel an hour by school van to the school they attend, as do all the other children living in this area. It’s just a reality of living here.

Someone in some position of authority decided that it won’t be good for this child to travel for school. While I agree that it’s not ideal to travel (and I wish my boys didn’t have to do it, either), there’s no school locally that meets his needs.

I asked our social worker, did they take into account that he’s in an foster home that needed him to be out weeks ago, that there’s no one else willing to take him, and that setting this parameter means he will be forced to stay where he is because there’s no school for him? Talk about losing sight of the forest for the trees.

I was taken aback to learn they’re putting all efforts to find him a school on hold until we have a home inspection done. This surprised me since we’re already licensed foster parents and did an initial home inspection; we have a social worker visit monthly so it’s not like we’re new to the system. (I had understood that the issue that was taking time was finding a school, and it was a couple weeks after we agreed to take him that they told me this.)

Don’t think that scheduling this home visit that everything supposedly hinges on has been a top priority. They’ve finally scheduled the visit for next week with three social workers in attendance – ours, the child’s, and one from social services in the area where the parents live.

I’ve learned that due to unfortunate negative stereotypes about charedim, there is resistance to placing this child with us since he is coming from a non-religious home. My social worker (who isn’t religious) told me as soon as they meet me they’ll realize whatever they’re worried about isn’t an issue but for right now they don’t know me, and the lack of speed in moving forward seems to be partially a reflection of social services being hesitant about us.

My family members have been asking me, will this child be coming to us? I really don’t know. When it comes to foster care, you don’t make any assumptions until that child is pretty close to being in your home. At this point it seems to me that we won’t be able to begin the visitation process until after Pesach, so if it does happen, it will probably not be for another five or six weeks.

Avivah

The day that Rafael was placed in my arms – 3 year anniversary

Today marks the third anniversary of the day that Rafael joined our family.

The foster care protocol was adjusted and bent and changed repeatedly to facilitate his arrival to our family. I shared about when we went to meet him at the hospital, accompanied only by his birth parents.

I didn’t write about the process of actually getting him, though. I shared pictures of his homecoming with all the kids holding him (go back and look again – weren’t they all so sweet?!?), but there were no pictures of me. All I referenced in the post was that it had been very draining. Very.

On the day we got Rafael we had another bending of protocol that added a huge emotional load to the experience for all of us. Instead of us picking him up from the hospital, he was checked out by his birth parents, who then took him to the offices of the foster care organization. It was in that office, accompanied by their social worker, our social worker, the head social worker, that both families finalized the agreement.

Finally the technicalities were completed. All that remained was to physically transfer the baby from them to us.

All that remained. As if that was a minor technicality.

No, it was all the reams of paperwork were the technicalities. The transfer of the baby was the most sensitive and heartwrenching experience.

His birth mother placed him in my arms, her eyes filled with tears. I don’t remember saying anything. What I do clearly remember is that they immediately left the office, and I turned toward the window overlooking the street, unable to speak for the tears in my eyes and the pain in my heart.

It was a moment of incredibly heightened emotion. We had so much anticipation of this little baby joining our family, but for me there was no happiness in that moment. In that moment, I saw only the heartbreak of another mother.

Through all the talking and paperwork, the baby slept.

We were told the baby needed to be awake for an extended period before he could be taken home. The ideas was to minimize trauma, so that he didn’t go to sleep on in one place and wake up in another, that there was some kind of preparatory transition for him.

This took quite some time. I don’t remember how long we were there, while the social workers observed us with him – more than two hours, but I don’t remember how much longer.

Not waking up, even after removing his snuggly warm clothing and repeated stimulation of all kinds (social workers in the background).


Moving his legs but still not opening his eyes.
Rafael looking tortured as I persisted in trying to get him to wake up.
“Ooh, look at you gorgeous boy, your eyes are open!” Hardly open, but open.

Once he was finally awake, my husband and I both held and interacted with him for a while.

We were at last allowed to give him a bottle, the final activity before taking him home. We couldn’t feed him sooner because it was likely he would have fallen right back asleep and he needed to be awake for an hour.

When we got home, all his siblings got a very brief chance to hold him. For the following week, he was hardly held by anyone but me. After having multiple caretakers for two months in the hospital, it was critical for him to bond with me and know me as his primary caretaker.

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Last week I had a meeting with staff at his school, and they commented that they never would have guessed that he wasn’t really my child.

He really is my child. While I didn’t give birth to him and he doesn’t (yet) legally share my last name, I couldn’t love him a drop more.

Rafael and his mommy, age 3.

I am so deeply, deeply grateful for the opportunity to parent this adorable ball of sunshine. It just keeps getting better.

Avivah

Staying positive when dealing with frustrating bureaucracy and seeing good results happening!

Yesterday I received the wonderful news that Yirmi (6) has been approved for an additional year of gan safa!

A month ago, after returning from a week at the beach with my family I wroteI know, I’m supposed to feel renewed and refreshed, but what I actually feel is assaulted by all the things I have to deal with. Things I don’t want to deal with. People I don’t want to interact with. Decisions that need to be made but I’m paralyzed by lack of clarity and purposeful direction.

Now that there has been some resolution of some things that I was dealing with, I’m going to share with you a glimpse of the back story to the above statement.

For months Yirmi’s school placement for next year was been hanging in the air. Although he was accepted to a mainstream first grade for the coming year, neither I nor any of the professionals assessing him thought putting him in traditional first grade at this time was the best option. However, I was told the likelihood he would be approved for another year of gan safa was almost nonexistent (due to his age). 

Yirmi, almost 7, celebrating birthday in gan
Yirmi, almost 7, celebrating birthday in gan

I went back and forth for weeks, trying to determine what the best course of action would be if he wasn’t approved. Should I send him to first grade, should I officially homeschool him, should I refuse to send him to school and unofficially homeschool him, or should I legally fight for his placement? I spent so many hours of wresting with this and wasn’t getting much clarity on what decision to go in!

I finally decided a few weeks ago that if he was denied gan safa, I would unofficially homeschool him and simultaneously legally fight until he got the appropriate placement. I then felt confident that he was going to go to gan safa one way or another!

And now he’s been approved without any drama, without any fighting, and with plenty of time before the coming school year.

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While dealing with the above, I was simultaneously advocating to get Yirmi changed to a different school bus. The escort on the bus regularly yelled at the kids and threatened them. When I complained, my concerns were verified and she was called in and given a warning. I was told to come back if the problem continued.

Of course the issue continued and I pulled Yirmi off the bus, taking him back and forth daily for weeks. When I went back to the municipality to report that the issue was still a problem, the person at that office (who had been on vacation when I initially dealt with this) adamantly told me  there’s no issue, no one else has complained, and clearly I’m the problem – because I don’t know how to communicate and ds6 is too sensitive.

In spite of that that hostile initial response, my concerns were again very quickly verified but no action was taken. I began to feel that something supernatural had to happen because it seemed that looking out for the emotional safety of the children involved wasn’t anyone’s focus but mine.  While I waited to see this official three weeks later, I repeatedly asked G-d to give me the words to open her heart so she would want to help me.

He did. 

I asked her if she had checked into my concerns and she said she had. What had she found out? I asked, knowing the answer. “That you’re right.” After a bit of back and forth with me being very low key and not speaking with even a hint of blame or hostility for their position until that point, she looked me steadily in the eyes without speaking for a full minute. While continuing to look me in the eye, she picked up her phone and called another bus escort to notify her that Yirmi was being shifted to her route, effective immediately. I had been told for months that this was impossible. One 60 second phone call and it was done.

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Then, also at the same time, I was informed that a report was sent to (or from? – no one will tell me who wrote it) social services that I bring Rafael to his daycare between 9:30  – 10 am, and when told he is missing his therapeutic interventions as a result of my tardiness, told them I don’t care. Since this was completely false (he’s always there between 8:30 – 9, in time for breakfast as per their guidelines), I assumed some obvious mistake had been made and it would quickly be corrected. Instead I was told there was no mistake, that everything that was written was true and I’m the problem. (Do you notice a pattern in official responses ?)

Since then they’ve admitted that they wrote incorrect information in the report (no one is saying it directly to me, of course, but they admitted it to my foster care social worker). However,  now that I’m on their radar it seems they want to create an issue, and I was told they will deny Rafael admission to their program next year unless I agree to leave him there for the full day program.

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Background to this discussion: After five months in daycare this year, his development had stalled so obviously that no one could deny it. At that point I began picking him up at 12:30 daily rather than letting him stay until 3:30/4 pm. Within a week he became happier, much more active, involved in activities at daycare, his development restarted and he’s now doing fabulously. Every single professional at the roundtable evaluation meeting in Feb. agreed that it was because of this decision of mine to pick him up early that he was doing so well.

Before I ever registered him for this program in Feb 2018, I asked them when the actual programming took place, and asked if there would be a problem if I picked him up when this programming was finished.  I was clearly told that the program takes place between breakfast and lunch, and as long as he’s there for that stretch of time and we pay the price for the full day, there’s no problem with me picking him up early.

Suddenly I’m being told that it’s a problem that I pick him up early because he is missing the benefits of inclusion. My social worker spoke to her supervisor and told me that they know how well Rafael is doing and understand my concerns, they know that I was told it was fine to pick him up early (they verified with the head of the daycare) but the foster care agency has to insist I comply and send him for the full day next year.

May 2019 at beach, age 2.5
May 2019 at beach, age 2.5

For a couple of days after I received the notice of the report I was very bothered. I was so upset, not that they made a mistake, but that they wouldn’t admit to their mistake. I was sorely tempted to pull him from the program for the coming year but due to foster care guidelines and demands I am left with no other viable options. Finally I took a mental step back and said to myself, I am not giving my power away. This feels real and intimidating but it’s really not. I have a choice how I choose to think about this.

It was good I had a chance to emotionally address this within myself since then I didn’t get upset and frustrated when being told about this new issue. I’m not going to feel stuck and powerless to make good choices for my child, I’m not going to tell myself how threatening and bad this is for Rafael . I’m completely sidestepping this power play.

I’m continuing to believe in the good will of all involved – truly, these are all nice people with good intentions – and trust that it will all work out for Rafael’s highest good next year. 

Avivah

Our foster care difficulties

Recently I was contacted by our social worker about participating in a new initiative, a roundtable discussion with the heads of the foster agency. I was told that there are hundreds of foster  parents in the Jerusalem area, and each social worker was asked to contact two or three parents in her caseload to ask them to share their experience.

I was also told that even if we agreed, it didn’t mean that we would actually end up being at the forum since there were potentially so many people who would accept the offer and at this point only six or seven couples could participate.

We said we’d be willing to come and later were approved as one of the couples to participate in this discussion in the coming week. It will be interesting to see how it goes!

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What has our foster care experience been like? While overall I’ve been grateful it’s been such a positive experience for us, I can’t say that everything was easy and smooth.

If you knew about the difficulties, would you still have gone forward?

Yes, absolutely. The difficulties weren’t as big as they initially felt.

But in the beginning it felt hard.

My main challenge was interacting with the birth mother.

When they place infants with special needs who were voluntarily given up, social workers are looking for families who will raise the child to adulthood, so it’s much more similar to adoption than foster care. This is different than the typical foster care placement system, in which the child is placed with a foster family until his biological family can be rehabilitated.

However, even though there are very significant differences in these two scenarios, legally they are treated in the same way. One result of this is that although the birth parents gave up their child, they are expected to have regular visits. (With typical foster care scenarios, the bio parents are expected to have the child reenter the home and it’s critical that the child maintains a relationship with them and views them as his real parents.)

A parent who makes the decision to give up a child is grieving; even if it’s what she chooses, it’s a gut wrenching choice. I can’t fathom the depth of emotions a parent in this situation experiences.

Sometimes this pain came out in ways that were uncomfortable for me because I was the one who replaced her as Rafael’s parent and the negativity was directed at me. Based on our initial interactions and their gratitude that they found a family they were so happy with, I wasn’t expecting hostility and when it came, it was hard for me. If I had been expecting it, it would have been easier since I could have prepared myself emotionally in advance.

However, I understand it and now that I look back, I wonder how it could have been otherwise.

Isn’t it difficult to have to ask me for permission to see the child she gave birth to? Whose child is he, anyway? Isn’t it painful to have to visit a child that you’ve decided you aren’t going to keep? What is her emotional role vis a vis him supposed to be? It’s confusing and takes emotional maturity to navigate this territory.

I also was afraid they would see how well Rafael was doing, regret the decision they made *perhaps based in part on a much more limited picture of his potential), and then decide to take him back.

Since we were dealing with the foster care system that has a stated belief that it’s always better for a child to be with his biological parents, they would be very responsive if the bio parents made this request. Although unusual for kids with special needs, it has happened; sometimes years after giving him up a parent decides they want the child back. And they always get him (so I was told).

I discussed this concern with our social worker and it wasn’t reassuring. Yes, I was told, that could happen and has happened to others and it would be best for him if that happened because it’s always best for a child to be with his biological family.

I protested, but we’re his family, we’re the only family he’s ever known from the very beginning – how could it be good for him to one day be ripped away and sent to live with people he doesn’t know at all? He would be completely traumatized and emotionally devastated, as we would be.

Well, that’s foster care, I was told, and that’s the reality you have to live with.

It was very hard for me to live with that in the background. I worried that all my investment into Rafael might be our undoing; I knew he would do much better with us than with a typical placement. It wasn’t until our most recent visit with his bio parents when they reassured me they have no intention of taking him back and they’re only visiting because they have to, that this fear faded. Until then I couldn’t get a read on what they were thinking and intending, and I had to consciously remind myself that it was G-d Who brought him into our family and it was G-d Who would continue to determine the best place for him.

One concern I had in the beginning was about the regular involvement of a social worker in my family’s life, and particularly in the decisions relating to Rafael. The reality is that I have all the responsibilities of a parent but not all of the executive decision making powers that a biological parent has.  For the most part this hasn’t yet been overly constraining or invasive but it is definitely a concern.

I’m very fortunate that my relationship with our social worker is excellent. She’s been impressed by how we parent, and sees how much love and dedication we have for Rafael. She also happens to speak English fluently, which is nice.

(At a recent meeting with seven professionals gathered to discuss Rafael’s educational placement for next year, remarks were made that implied that I was limiting Rafael’s development by not keeping him at his daycare for longer hours. This social worker jumped to my defense and told them what a  dedicated mother I am, how everything I do is with his best interests and development in mind, and that my home is an incredible nonstop therapeutic environment for him. I was so touched to hear her say all of that.)

Those were the main challenges I had specific to the foster care situation.

At this point I feel somewhat like someone a couple of years after giving birth – you remember there were parts that were hard but the difficulties fade away and the reality of you’re left with is of the wonderfulness of having your child.

Avivah

 

Two years since Rafael joined our family!

Just over two years ago, Rafael joined our family.  His biological mother left the hospital without him when he was a day old, and for two months he lay in a hospital nursery waiting for a family. And then in what was clearly divinely orchestrated, a match was made between him and our family.

Many people have asked me, why in the world would we want to add another child with Trisomy 21 to our family?

You know how when people don’t understand something you do, they think you’re either crazy or put you up on a pedestal of righteousness? There’s another explanation. 🙂

After having Yirmi, the T21 label and stereotype lost a lot of the power it would have had without our personal experience. It became very simple – a child with T21 is a child. Not a label, not a disability, not a tragedy, not a burden – but a blessing.  Just as every other child is a blessing.

Knowing that the vast majority of newborns in the foster care system in this country are voluntarily given up because of T21 was very painful for me to think about. I would look at Yirmi and look at how our lives have been expanded and enriched. Then I would think about all these beautiful babies who were given up due to ignorance or lack of accurate information.

We knew a lot about T21, we had a strong family with a lot of love to give, we were open to having more children… and this is the direction it made sense for us to go in.

I would often think of the story of the starfish thrower, initially written as a 16 page story by Dr. Loren Eiseley. Here’s a very short video adaptation:

(A boy was throwing starfish that were stranded on the beach back into the ocean. A man said, there’s too many starfish, your efforts can’t possibly make a difference. The boy meant down, picked up another starfish, threw it into the ocean and said, “It made a difference to that one.”)

I couldn’t change the reasons people were giving these babies up (while I thought about advocacy on this front it was clear it wasn’t meant to be my role at this point), I couldn’t given them all a home, but I could make a difference to one child.

Just one child.

Yet every child is a world.

And so we applied to be foster parents specifically for babies with special needs (who are placed into the long term foster care system rather than being placed for adoption).

Five days after our application was completed, we got the call about Rafael.

Three weeks later, he was home with us.

Two years have flown by and we can’t imagine life without him.

Avivah

 

Look who is turning 2!!!

I can hardly wrap my head around this little cutie pie turning 2!!! Does time seem to be going faster and faster or it is just me?

It doesn’t seem that long ago that we brought Rafael home from the hospital.

So how has this boy been doing??

Overall he’s been doing great though there has been some disappointing and upsetting developmental backtracking . Remember that video of him being so excited to learn to stand? He was standing all the time, and looking like walking was on the near horizon.

And then – the holidays ended and he was back to daycare. He was continually sick and always seemed tired and weak. He completely stopped standing, let alone move forward with anything else. His physical therapist told me a couple of days ago that it’s like he’s gone backwards several months developmentally, which is exactly what I see.

That’s the hardest part about fostering, that sometimes I have to do something I don’t believe to be in his best interests because that’s what the system demands. I can see it’s daycare isn’t good for him, and yet I still have to do it because they think a child does better in an outside educational framework. I pushed hard for an extra year for him to be at home with me and got it, and have to remind myself to feel grateful we were able to delay daycare as long as we were.

An issue that’s been challenging for us is that Rafael has shown very little inclination to eat from the time we started offering him solids at 10 months. From that time, he never ate more than two teaspoons a day total and only of few very foods. Nothing sweet. Nothing mushy. Nothing too chunky. Cucumbers and rice cakes were the only constants he would agree to.

Though he was medically approved for a specialty formula from the time he was a small infant, we didn’t often give it to him because we used donated mother’s milk. Only when we ran out would we use the formula, and it was very apparent that he never got sick except when he had formula for more than two or three days.

Recently he went through a month long period of one cold after another, nothing serious in and of itself;  the daycare staff told me it’s typical for a child in his first year of daycare. But he wasn’t eating much and he was even throwing up small amounts of formula – and my husband finally said, that’s it, we’re getting him off this formula.

I worried, how can we do that when he’s hardly eating anything? I mean, this child doesn’t eat. The formula was my security blanket, to know he was getting nourishment.  My husband said, the formula is making him sick, we’ve got to give him something else.

I had thought of replacing his formula with chicken broth several months before, but his speech therapist said she didn’t want me to do that. That night, we went cold turkey on the formula.

He was a very unhappy child for about a day and a half, during which time he very reluctantly would drink some small amounts of chicken soup from his bottle. But within two days, he was feeling much, much better. He suddenly was healthy again.

Not only that, suddenly he wanted to eat.  A lot. It was crazy and striking and amazing.

He began to intently watch everyone eating and literally overnight started to motion to have that food. And then he’d finish it, and have more. And then more of something else. After 14 months of trying and trying so many different foods and so many different ways to get him to eat, it was miraculous. I was afraid to believe it, afraid it was just a fluke.

But it wasn’t. And a couple of days after that, he stood up for the first time in six weeks.

So that’s all been very recent and very exciting!

The next thing that I’m working on is getting his sleep adjusted. Before he went to daycare, he would take a morning and afternoon nap, and sleep through the night. He was generally an extremely happy and good natured baby.

Then that all changed. He stopped sleeping through the night and the much shorter nap he had at daycare was much less than he was getting at home. He has been really grumpy and miserable when I pick him up, purely as a result of exhaustion. I estimated he was losing about 3 hours of sleep daily. That’s a LOT.

But by the time he gets home it’s mid afternoon and too late in the day for another nap.  So that’s the challenge right now which I feel very optimistic about resolving.

I don’t have a camera but my oldest daughter came by for dinner tonight and I asked her to snap some shots to share with you in honor of his birthday.

Me and Rafael, 2 years old.
Me and Rafael, 2 years old.

Me and Rafael, 2 years old.
Me and Rafael, 2 years old.

Rafael has a way of showing very clearly his feelings for someone. When he sees someone he loves, his face lights up and he reaches both hands out to him- my boys love being the one to pick him up from daycare because they are then the recipient of his beaming smile and outreached hands.

Just like this!

 

Oh, my gosh, how we love this boy!

Avivah

Why we chose foster care rather than adoption

Can you believe it’s only been six weeks since R joined our family?!?  He so quickly became an integral part of the family that my younger boys told me they can hardly remember him not being part of our lives!

R - 10 weeks old (photography by Chani Ceitlin)
R – 10 weeks old (photography by Chani Ceitlin)

During this period, we’ve constantly been asked (literally in almost every conversation): “Why did you choose foster care rather than adoption?”   

The answer is simple, not based on idealism or preferences but need.  Here in Israel, babies with Trisomy 21 who are given up aren’t usually available for adoption – they go into the long term foster care system. And so we went where the babies who needed families were.

I have been very pained seeing babies with T21 being given up because of their diagnosis.  According to the placement social worker, they are the only children voluntarily given up as newborns – not those with much more complicated medical diagnoses or those with a more limited long term prognosis.

R - 10 weeks old
R – 10 weeks old

It was a combination of our strong family values and the desire to be part of the solution rather than complaining about the situation that prompted us to begin the qualification process to be foster parents specifically for an infant with T21.

“Practically speaking, what does it mean to foster?”

Our intention is to raise R as a member of our family in every way and unless his foster care status changes, he will be with us until he is an adult (age 21).  While in many ways this is very similar to an open adoption-  regardless of how we feel or what our intentions are, R is not legally our child.

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That means that we will have social workers coming into our home at least monthly to check on him for the next two decades.  It means he has a different last name than my other children.  It means visits from the birth parents.  It means significant decisions for him have to made in conjunction with his birth parents and social workers, and my personal preferences regarding his care can be overridden. (It also means that I needed signed permission before posting any of these pictures!)

Most significantly, if his birth parents were to change their minds they could at any time take him back.  Though it’s unusual for children who were given up because of their special needs to later be taken back, it does happen.

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I can’t lightly skip over this possibility because it has created a pervasive sense of unease within me that I didn’t anticipate.   I’ve shared this feeling with our social worker, and her answer is to sympathize but say, “This is the reality of foster care,” and to remind me that it’s the birth parents’ right to take him back whenever they want.

“Will R be able to be adopted at some point?”

When we were shown R’s file, we were asked if we were willing adopt him if his status changed.  We immediately said ‘yes’.  However, based on what was explained to us about why and when children are transferred to the adoption track, it seems to me the likelihood of him being placed for adoption is extremely low.

We didn’t go into fostering without a great deal of thought and discussion as a family.  We knew there would be challenges and we decided that letting fear of the unknown keep us from offering our home to a child in need wasn’t the right choice.

And though it would be understandable to hold back a tiny piece of one’s heart for self-protection, we’re not letting fear keep us from unreservedly loving our newest addition.

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Though the external circumstances aren’t perfectly smooth,  we’re so happy and grateful he’s part of our family!

Avivah

**Thank you to the wonderfully talented, patient and sensitive Chani Ceitlin for her photography!**

Meeting the baby’s birth parents

Before I met the birth parents of the baby whose file we had been recommended for, I had a clear idea of what we were looking for.

I have a high value for win-win relationships and it was important to me that the parents are people whom we liked and respected, and who would like and respect us.  It’s also important to me that the child we bring into our family can be raised like all of our other kids, to have a true sense of belonging – not to be pulled between two families.  This was my biggest concern about fostering.

If I made a wish list of what I wanted the birth parents to be like, it would look like this couple.  Really.  I couldn’t have custom ordered a better set of parents to be in this relationship with.

By the time they met us, they had already met with two other families and interviewed a third on the phone.   (We were the only family recommended by our agency; the other families were through other agencies.) The wife told me they aren’t going to just take whoever is available, that they’ll wait two or three weeks longer if necessary to find a really good home for him. Since this is a placement for the next 21 years, they want him to be in a home where he will be truly loved and nurtured.

(This placement is in some ways more similar to an open adoption than what is typically referred to as ‘foster care’.  Foster care is intended as a temporary situation with the intent to rehabilitate the family so the child can return.  We certified to do foster care for children with special needs, and in these cases, the child is given up because of a disability that the parents aren’t able to deal with and there is no expectation that the child will return to live with his biological parents.  However, the biological parents are expected to maintain some kind of connection with the child – this can be as infrequent as two hours once a year – the child keeps their last name and they have the legal rights to make decisions for the child.)

We were the last option – the couple was told some inaccurate information about what kind of community RBS is and that’s why we weren’t initially contacted for a meeting. That was later corrected and then they were in touch with me.

They are kind, intelligent, caring, open minded, and very very much appreciate the kind of home environment we can provide.  Our expectations of one another and how we see the fostering relationship being handled is very compatible.  We genuinely like and respect them, and it seems the feeling is mutual.

We agreed that we’d all like to move forward with this placement and if it were up to us, we’d have all driven to the hospital together and taken care of it right then!  But it’s not up to us.

Though there are two motivated sets of parents and a six week old infant waiting in the hospital who is medically ready to be released, we have to wait for the social workers to be in touch with one another to set an official time for us all to meet in their presence.  Then there are technical details to sort out and then we have to meet with the doctors at the hospital and meet the baby himself.

None of that sounds to me like it should take that long and I expected that the parents having already met would have expedited this process significantly.  But there seems to be a protocol that needs to be followed regardless.

Almost two weeks ago I was told the placement could be done within two days, and then told it could even be pushed into one long day if necessary.  Today I asked for some kind of timeline so I can make plans for my week – I can’t leave every day completely open just in case they decide to call me in at the last minute.  She said that she really can’t tell me how long it could be, that all these factors aren’t in her control and it could take another week.  Or maybe more?  It’s very undefined, which leaves me wondering how long this could drag out for?

I called a friend who is an experienced foster parent and outlined the entire situation.  Is it likely, I asked, that in this situation – with both sets of parents in agreement along with us already being certified – that something can happen so that it won’t work out?  She didn’t think it was likely.  Possible, but not likely.

An Israeli friend who is a lawyer told me to be careful not to get emotionally involved, that until everything has been tied up, there’s no assurances of anything.

She’s right.  Anything can happen and there’s no guarantee that this will work out, as positive as it all seems right now.

So that’s where I am now.  Once more, waiting and wondering.

Avivah